Starting at roughly 16 years (now 46) my legs have given me problems, jumpy (kinda like worms crawling up them) and I have NEVER been that coordinated. Just always klutzy like my Mom.
When I was 25 I was working full-time (M-F), part-time waitressing (Sunday brunch as well as Tue and Thur nights 5PM to Midnight) getting home around 1AM. I was pushing it physically, but I had a goal in mind.
You see, me and my friend Louise just came back from our second Honolulu trip, and I (being the "smart" one ) took a waitressing job at my friends (Eric & Allura) restaurant to gain experience waitressing (these folks don't get the appreciation they deserve) - wait for it, so we could move to Honolulu and support ourselves as waitresses. Hey we were 25 and dreaming of living in a tropical destination!!
So burning the candle (so to speak) at both ends, in my tired state I remember taking the skytrain (kinda like a subway, but above ground) and after working my day job (8:30 to 4:30) I walked down the stairs in the station, when I got to the bottom my legs just gave way and I fell to my knees. I put it down to being just plain tired. Then when I was about 34 I kept going to the doctor about my jumpy legs (thought it was RLS) and for the next 5 years all the docs just seemed to scratch their heads and look puzzled. One doctor actually said, mmh I think it might be MS. Man I wanted to slug him! Now I wish I had listened and pursued his "diagnosis" no matter how off the cuff it was.
FINALLY when I was around 39 I had a number of changes personally (involving my job) I was at the doctor about 3x per week looking for results. He kept leaving the exam room (looking stuff up) and finally came back and said I am sending you to a neuro, one of the best in Vancouver. And finally as a 40th birthday present - yeah!- I got the dx of MS. :( So it takes persistence, keep bugging the doctors and do all possible to get the results. It may not necessarily the one you want, but at least you can move forward.
- Surrey, BC, Canada
- DX in '01 with MS; in Jan 02, Told it was PPMS "the good kind" whatever that means.... The progression of my MS has been a long and arduous journey, the last 5 years specifically. I went from complete independance (I drove, went to the mall, movies etc) to the point I am at now. I haven't been to a grocery store in about 3 years (I love grocery shopping), Ikea it has been about 5 years, Costco, at least 5 years - SUCKS!! My DL expired last birthday, and I didn't renew right away for two reasons - I didn't want to drive because of my MS (being responsible) and 2, I couldn't afford the renewal fee (cut my wage by $4 per hour due to the economy, which led to apathy on my part) Married since 1994 to my AMAZING husband, Dan; no kids but we have the freedom to travel - and travel we do!