Angioplasty in Cabo!
My CCSVI Journey and rebirth
About Me
- Lori
- Surrey, BC, Canada
- DX in '01 with MS; in Jan 02, Told it was PPMS "the good kind" whatever that means.... The progression of my MS has been a long and arduous journey, the last 5 years specifically. I went from complete independance (I drove, went to the mall, movies etc) to the point I am at now. I haven't been to a grocery store in about 3 years (I love grocery shopping), Ikea it has been about 5 years, Costco, at least 5 years - SUCKS!! My DL expired last birthday, and I didn't renew right away for two reasons - I didn't want to drive because of my MS (being responsible) and 2, I couldn't afford the renewal fee (cut my wage by $4 per hour due to the economy, which led to apathy on my part) Married since 1994 to my AMAZING husband, Dan; no kids but we have the freedom to travel - and travel we do!
Friday, November 5, 2010
Stress & MS
I feel great most of the time, just when I get a little stressed I get the numbness back, like now. My work raised about $13,000+ for my treatment and I am trying to coordinate with the GM toget my money - I want to pay down the credit card before the big bills come in. Oh well, I was supposed to get it today, but he is not returning my messages :(
Sunday, October 24, 2010
My MS treatment - yes I'm back!!
Hello all! I am back from Cabo San Lucas, and am THRILLED with the results! I won’t bore you with the incredible calibre of care received by everyone at the AmeriMed hospital, only to say I would not hesitate to return for any operation! Sorry if I run on a little long, but I am so excited.
Saturday night
I arrived to the hotel on Sat Oct 16/10 at around 5PM and was met by the two coordinators from the hospital where we dealt with all the paperwork and what my schedule would be. To expedite, they recommended I go that evening to get my MRI, then have Sunday free to eat & drink anything (as Andreas the awesome hospital coordinator told me to do), and go to the hospital Monday morning at 8AM for a plethora of tests and the procedure.
We ensured the luggage was in our room, then went to the hospital, where I was led out of the main clinic in a wheelchair by the MRI technician, across the parking lot (feeling weird), behind the hospital to a portable ATCO type trailer, placed on to a wobbly lift and elevated to the machine. Felt weird, but when you realize that in Mexico, they place value on the care and quality of the equipment, and not so much on what the building looks like you understand. So after the initial MRI they needed to inject contrast dye in my veins, and this is where it got interesting.
They could not find a vein to inject the dye into. The guy tried twice in my left arm, then my right arm. He had a senior nurse come out to help and she finally found a vein in my left hand and they injected the dye!! I finally got back to the hotel at 10:49 PM, bruised and starving as we hadn’t eaten since that morning in Vancouver.
Monday morning, 8AM at the hospital – met with a team of doctors (Neurologists’ etc)
for my Neuro exam (including standing, walking and balance, general memory & and coordination) Had a hearing test, left ear damaged, only about 25% hearing left in left ear. Doppler scan – this was disappointing, as it showed no CCSVI, however, the tech recommended I receive the procedure anyway as there was something that did not seem right. - Blood work (my cholesterol level was good they said, yeah for small things). The finally around 1-1:30 off for my procedure. Nice and easy, the surgeon (my newest hero Dr. Rafael Moguel) had Supertramp playing which was pretty awesome and relaxing. Then Victor ( the anaesthesiologist sat beside me and stroked my head and held my hand telling me, this will only hurt for a minute, are you okay (since when do you get that type of care in BC?). The only pain I felt was when they were ballooning my jugular veins. There was definite Stenosis/Occlusion in both jugulars, leaving me with approximately 30-40% proper circulation. (Stenosis is more like a “kink” in the vein; it is the narrowing of a blood vessel or any other opening inside the body. This narrowing can cause an obstruction or blockage to occur). He ballooned the left side twice, and the right side once.
Before I knew it, all was done they bandaged me up and wheeled me back to recovery. After resting for about 30 minutes, they brought me a burger (that I ordered), and a huge plate of fresh fruit (one of the reasons Mexico is so great). After eating, I got changed and upon standing noticed the first improvement – my left ear, the hearing was almost perfect, and I had balance (no wobbling!). Back to the hotel by 5PM, and asleep by 6:30! I spent the next few days resting, sleeping & eating. I walked a fair bit, but definitely need some physio and exercise to rebuild my strength.
Immediate Improvements –
- Hearing
- Balanced standing
- My right foot lifts, does not drag – ergo no tripping!
- Vision, ever so slightly better – need to get a new prescription!
- Fatigue/Energy level, no longer exhausted by 8PM
- Heat tolerance – no longer always hot! I don’t need a fan on me always
- Arms I can lift them past my waist now and reach for the sky! (In Surrey, a Dr assumed it was bursitis, if it was, no more!)
- No cog-fog – this was immediate!
- My right hand, the numbness that has plagued me for years is almost gone, I can cut my food if needed and write better than a child
- No longer choke on food!
Went for follow-up exam, the ear doctor said he wished all patients were like me, left ear improved by more than 15 decibels. Walking speed was better by 8-10 seconds or so, and I closed my eyes while standing and didn’t “list” to one side or fall.
Some of these things will continue to improve with time and physical work on my part – which I can now do as I am no longer always exhausted!! I am also starting a “heavy metal cleanse” – meant to reduce the levels my body naturally (unnaturally?) stores.
All in all, the best money I ever spent! I was mistaken - I will need to pay a nominal charge plus my air & hotel for follow-up care.. still the best reason to spend 15grand.... I mean this was “risky and Dangerous”, so it is doubtful an appropriate doctor would touch this (i.e. a Vascular doctor).
It is a real shame this can’t be done locally though, as this just proves, while not a cure for MS it is definitely worth it. In my opinion, this is truly a job better suited to the “plumber” (vascular) versus the “electrician” (neurologist). Cabo - just Cabo - is expecting 60+ Canadians in January 2011!!
Thursday, October 14, 2010
e-MAIL ADDRESSES
Blaine Calkins
Calkins.B@parl.gc.ca AB Conservative
Diane Ablonczy
Ablonczy.D@parl.gc.ca AB Conservative
Rick Casson
Casson.R@parl.gc.ca AB Conservative
Rob Anders
Anders.R@parl.gc.ca AB Conservative
Rona Ambrose
Ambrose.R@parl.gc.ca AB Conservative
Stephen Harper
Harper.S@parl.gc.ca AB Conservative
Leon Benoit
Benoit.L@parl.gc.ca AB Conservative
Linda Duncan
Duncan.L@parl.gc.ca AB NDP
Peter Goldring
Goldring.P@parl.gc.ca AB Conservative
Laurie Hawn
Hawn.L@parl.gc.ca AB Conservative
Brian Jean
Jean.B@parl.gc.ca AB Conservative
Jason Kenney
Kenney.J@parl.gc.ca AB Conservative
Mike Lake
Lake.M@parl.gc.ca AB Conservative
Ted Menzies
Menzies.T@parl.gc.ca AB Conservative
Rob Merrifield
Merrifield.R@parl.gc.ca AB Conservative
Deepak Obhrai
Obhrai.D@parl.gc.ca AB Conservative
Lavar Payne
Payne.L@parl.gc.ca AB Conservative
Jim Prentice
Prentice.J@parl.gc.ca AB Conservative
James Rajotte
Rajotte.J@parl.gc.ca AB Conservative
Brent Rathgeber
Rathgeber.B@parl.gc.ca AB Conservative
Blake Richards
Richards.B@parl.gc.ca AB Conservative
Lee Richardson
Richardson.L@parl.gc.ca AB Conservative
Devinder Shory
Shory.D@parl.gc.ca AB Conservative
Kevin Sorenson
Sorenson.K@parl.gc.ca AB Conservative
Brian Storseth
Storseth.B@parl.gc.ca AB Conservative
Tim Uppal
Uppal.T@parl.gc.ca AB Conservative
Chris Warkentin
Warkentin.C@parl.gc.ca AB Conservative
Alex Atamanenko
Atamanenko.A@parl.gc.ca BC NDP
Don Davies
Davies.D@parl.gc.ca BC NDP
Dona Cadman
Cadman.D@parl.gc.ca BC Conservative
Ed Fast
Fast.E@parl.gc.ca BC Conservative
Fin Donnelly
Donnelly.F@parl.gc.ca BC NDP
Jean Crowder
CrowdJ@parl.gc.ca BC NDP
Jim Abbott
Abbott.J@parl.gc.ca BC Conservative
John Cummins
Cummins.J@parl.gc.ca BC Conservative
John Duncan
Duncan.J@parl.gc.ca BC Conservative
Libby Davies
Davies.L@parl.gc.ca BC NDP
Nathan Cullen
Cullen.N@parl.gc.ca BC NDP
Nina Grewal
Grewal.N@parl.gc.ca BC Conservative
Peter Julian
Julian.P@parl.gc.ca ; BC NDP
Randy Kamp
Kamp.R@parl.gc.ca BC Conservative
Ron Cannan
Cannan.R@parl.gc.ca BC Conservative
Russ Hebert
Hiebert.R@parl.gc.ca BC Conservative
Stockwell Day
Day.S@parl.gc.ca BC Conservative
Sukh Dhaliwal
Dhaliwal.S@parl.gc.ca BC Liberal
Ujjal Dosanjh
Dosanjh.U@parl.gc.ca BC Liberal
Hedy Fry
Fry.H@parl.gc.ca BC Liberal
Richard M. Harris
Harris.R@parl.gc.ca BC Conservative
Jay Hill
Hill.J@parl.gc.ca BC Conservative
Gary Lunn
Lunn.G@parl.gc.ca BC Conservative
James Lunney
Lunney.J@parl.gc.ca BC Conservative
Keith Martin
Martin.K@parl.gc.ca BC Liberal
Colin Mayes
Mayes.C@parl.gc.ca BC Conservative
Cathy Mcleod
McLeod.C@parl.gc.ca BC Conservative
James Moore
Moore.J@parl.gc.ca BC Conservative
Joyce Murray
Murray.J@parl.gc.ca BC Liberal
Denise Savoie
Savoie.D@parl.gc.ca BC NDP
Andrew Saxton
Saxton.A@parl.gc.ca BC Conservative
Bill Siksay
Siksay.B@parl.gc.ca BC NDP
Chuck Strahl
Strahl.C@parl.gc.ca BC Conservative
Mark Warawa
warawm7@parl.gc.ca BC Conservative
John Weston
Weston.J@parl.gc.ca BC Conservative
Alice Wong
Wong.A@parl.gc.ca BC Conservative
Terry Lake
terry.lake.mla@leg.bc.ca BC Liberal
Gordon Campbell
premier@gov.bc.ca BC Liberal
Kevin Falcon
kevin.falcon.mla@leg.bc.ca BC Liberal
Colin Hansen
colin.hansen.mla@leg.bc.ca BC Liberal
Carole James
carole.james.mla@leg.bc.ca BC NDP
Bruce Ralston
bruce.ralston.mla@leg.bc.ca BC NDP
Adrian Dix
adrian.dix.mla@leg.bc.ca BC NDP
Jenny Kwan
jenny.kwan.mla@leg.bc.ca BC NDP
Mike Allen
Allen.M@parl.gc.ca NB Conservative
Niki Ashton
Ashton.N@parl.gc.ca MB NDP
Rod Bruinooge
Bruinooge.R@parl.gc.ca MB Conservative
James Bezan
Bezan.J@parl.gc.ca MB Conservative
Steven Fletcher
Fletcher.S@parl.gc.ca MB Conservative
Shelly Glover
Glover.S@parl.gc.ca MB Conservative
Candice Hoeppner
Hoeppner.C@parl.gc.ca MB Conservative
Jim Maloway
Maloway.J@parl.gc.ca MB NDP
Pat Martin
Martin.Pat@parl.gc.ca MB NDP
Anita Neville
Neville.A@parl.gc.ca MB Liberal
Joy Smith
Smith.J@parl.gc.ca MB Conservative
Vic Toews
Toews.V@parl.gc.ca MB Conservative
Merv Tweed
Tweed.M@parl.gc.ca MB Conservative
Dennis Bevington
Bevington.D@parl.gc.ca NWT NDP
Leona Aglukkaq
Aglukkaq.L@parl.gc.ca ; NUN Conservative
Carol Hughes
Hughes.C@parl.gc.ca ; ON NDP
Charlie Angus
Angus.C@parl.gc.ca ON NDP
Cheryl Gallant
Gallant.C@parl.gc.ca ; ON Conservative
Dean Allison
Allison.D@parl.gc.ca ON Conservative
Harold Albrecht
Albrecht.H@parl.gc.ca ON Conservative
Jack Layton
Layton.J@parl.gc.ca ; ON NDP
Kirsty Duncan
Duncan.K@parl.gc.ca ; ON Liberal
Malcolm Allen
Allen.Ma@parl.gc.ca ON NDP
Mauril Belanger
BelanM@parl.gc.ca ; ON Liberal
Michael Ignatieff
Ignatieff.M@parl.gc.ca ON Liberal
Navdeep Bains
Bains.N@parl.gc.ca ON Liberal
Patricia Davidson
Davidson.P@parl.gc.ca ; ON Conservative
Patrick Brown
BrownPa@parl.gc.ca ; ON Conservative
Peter Braid
Braid.P@parl.gc.ca ; ON Conservative
John Baird
Baird.J@parl.gc.ca ON Conservative
Carolyn Bennett
Bennett.C@parl.gc.ca ON Liberal
André Arthur
Arthur.A@parl.gc.ca PQ Independent
Claude Bachand
BachaC@parl.gc.ca PQ Bloc
Gérard Asselin
Asselin.G@parl.gc.ca PQ Bloc
Gilles Duceppe
Duceppe.G@parl.gc.ca PQ Bloc
Guy André
Andre.G@parl.gc.ca PQ Bloc
Luc Malo
Malo.L@parl.gc.ca; PQ Bloc
Josée Beaudin
Beaudin.J@parl.gc.ca PQ Bloc
André Bellavance
Bellavance.A@parl.gc.ca PQ Bloc
Maxime Bernier
BerniM@parl.gc.ca PQ Conservative
Justin Trudeau
Trudeau.J@parl.gc.ca PQ Liberal
David Anderson
Anderson.Da@parl.gc.ca SK Conservative
Garry Breitkreuz
Breitkreuz.G@parl.gc.ca SK Conservative
Kelly Block
Block.K@parl.gc.ca ; SK Conservative
Ralph Goodale
Goodale.R@parl.gc.ca ; SK Liberal
Ray Boughen
Boughen.R@parl.gc.ca SK Conservative
Rob Clark
Clarke.R@parl.gc.ca SK Conservative
Randy Hoback
Hoback.R@parl.gc.ca SK Conservative
Ed Komarnicki
Komarnicki.E@parl.gc.ca SK Conservative
Tom Lukiwski
Lukiwski.T@parl.gc.ca SK Conservative
Gerry Ritz
Ritz.G@parl.gc.ca SK Conservative
Andrew Scheer
Scheer.A@parl.gc.ca SK Conservative
Brad Trost
Trost.B@parl.gc.ca SK Conservative
Maurice Vellacott
Vellacott.M@parl.gc.ca SK Conservative
Lynne Yelich
Yelich.L@parl.gc.ca SK Conservative
Larry Bagnell
Bagnell.L@parl.gc.ca YK Liberal
Calkins.B@parl.gc.ca AB Conservative
Diane Ablonczy
Ablonczy.D@parl.gc.ca AB Conservative
Rick Casson
Casson.R@parl.gc.ca AB Conservative
Rob Anders
Anders.R@parl.gc.ca AB Conservative
Rona Ambrose
Ambrose.R@parl.gc.ca AB Conservative
Stephen Harper
Harper.S@parl.gc.ca AB Conservative
Leon Benoit
Benoit.L@parl.gc.ca AB Conservative
Linda Duncan
Duncan.L@parl.gc.ca AB NDP
Peter Goldring
Goldring.P@parl.gc.ca AB Conservative
Laurie Hawn
Hawn.L@parl.gc.ca AB Conservative
Brian Jean
Jean.B@parl.gc.ca AB Conservative
Jason Kenney
Kenney.J@parl.gc.ca AB Conservative
Mike Lake
Lake.M@parl.gc.ca AB Conservative
Ted Menzies
Menzies.T@parl.gc.ca AB Conservative
Rob Merrifield
Merrifield.R@parl.gc.ca AB Conservative
Deepak Obhrai
Obhrai.D@parl.gc.ca AB Conservative
Lavar Payne
Payne.L@parl.gc.ca AB Conservative
Jim Prentice
Prentice.J@parl.gc.ca AB Conservative
James Rajotte
Rajotte.J@parl.gc.ca AB Conservative
Brent Rathgeber
Rathgeber.B@parl.gc.ca AB Conservative
Blake Richards
Richards.B@parl.gc.ca AB Conservative
Lee Richardson
Richardson.L@parl.gc.ca AB Conservative
Devinder Shory
Shory.D@parl.gc.ca AB Conservative
Kevin Sorenson
Sorenson.K@parl.gc.ca AB Conservative
Brian Storseth
Storseth.B@parl.gc.ca AB Conservative
Tim Uppal
Uppal.T@parl.gc.ca AB Conservative
Chris Warkentin
Warkentin.C@parl.gc.ca AB Conservative
Alex Atamanenko
Atamanenko.A@parl.gc.ca BC NDP
Don Davies
Davies.D@parl.gc.ca BC NDP
Dona Cadman
Cadman.D@parl.gc.ca BC Conservative
Ed Fast
Fast.E@parl.gc.ca BC Conservative
Fin Donnelly
Donnelly.F@parl.gc.ca BC NDP
Jean Crowder
CrowdJ@parl.gc.ca BC NDP
Jim Abbott
Abbott.J@parl.gc.ca BC Conservative
John Cummins
Cummins.J@parl.gc.ca BC Conservative
John Duncan
Duncan.J@parl.gc.ca BC Conservative
Libby Davies
Davies.L@parl.gc.ca BC NDP
Nathan Cullen
Cullen.N@parl.gc.ca BC NDP
Nina Grewal
Grewal.N@parl.gc.ca BC Conservative
Peter Julian
Julian.P@parl.gc.ca ; BC NDP
Randy Kamp
Kamp.R@parl.gc.ca BC Conservative
Ron Cannan
Cannan.R@parl.gc.ca BC Conservative
Russ Hebert
Hiebert.R@parl.gc.ca BC Conservative
Stockwell Day
Day.S@parl.gc.ca BC Conservative
Sukh Dhaliwal
Dhaliwal.S@parl.gc.ca BC Liberal
Ujjal Dosanjh
Dosanjh.U@parl.gc.ca BC Liberal
Hedy Fry
Fry.H@parl.gc.ca BC Liberal
Richard M. Harris
Harris.R@parl.gc.ca BC Conservative
Jay Hill
Hill.J@parl.gc.ca BC Conservative
Gary Lunn
Lunn.G@parl.gc.ca BC Conservative
James Lunney
Lunney.J@parl.gc.ca BC Conservative
Keith Martin
Martin.K@parl.gc.ca BC Liberal
Colin Mayes
Mayes.C@parl.gc.ca BC Conservative
Cathy Mcleod
McLeod.C@parl.gc.ca BC Conservative
James Moore
Moore.J@parl.gc.ca BC Conservative
Joyce Murray
Murray.J@parl.gc.ca BC Liberal
Denise Savoie
Savoie.D@parl.gc.ca BC NDP
Andrew Saxton
Saxton.A@parl.gc.ca BC Conservative
Bill Siksay
Siksay.B@parl.gc.ca BC NDP
Chuck Strahl
Strahl.C@parl.gc.ca BC Conservative
Mark Warawa
warawm7@parl.gc.ca BC Conservative
John Weston
Weston.J@parl.gc.ca BC Conservative
Alice Wong
Wong.A@parl.gc.ca BC Conservative
Terry Lake
terry.lake.mla@leg.bc.ca BC Liberal
Gordon Campbell
premier@gov.bc.ca BC Liberal
Kevin Falcon
kevin.falcon.mla@leg.bc.ca BC Liberal
Colin Hansen
colin.hansen.mla@leg.bc.ca BC Liberal
Carole James
carole.james.mla@leg.bc.ca BC NDP
Bruce Ralston
bruce.ralston.mla@leg.bc.ca BC NDP
Adrian Dix
adrian.dix.mla@leg.bc.ca BC NDP
Jenny Kwan
jenny.kwan.mla@leg.bc.ca BC NDP
Mike Allen
Allen.M@parl.gc.ca NB Conservative
Niki Ashton
Ashton.N@parl.gc.ca MB NDP
Rod Bruinooge
Bruinooge.R@parl.gc.ca MB Conservative
James Bezan
Bezan.J@parl.gc.ca MB Conservative
Steven Fletcher
Fletcher.S@parl.gc.ca MB Conservative
Shelly Glover
Glover.S@parl.gc.ca MB Conservative
Candice Hoeppner
Hoeppner.C@parl.gc.ca MB Conservative
Jim Maloway
Maloway.J@parl.gc.ca MB NDP
Pat Martin
Martin.Pat@parl.gc.ca MB NDP
Anita Neville
Neville.A@parl.gc.ca MB Liberal
Joy Smith
Smith.J@parl.gc.ca MB Conservative
Vic Toews
Toews.V@parl.gc.ca MB Conservative
Merv Tweed
Tweed.M@parl.gc.ca MB Conservative
Dennis Bevington
Bevington.D@parl.gc.ca NWT NDP
Leona Aglukkaq
Aglukkaq.L@parl.gc.ca ; NUN Conservative
Carol Hughes
Hughes.C@parl.gc.ca ; ON NDP
Charlie Angus
Angus.C@parl.gc.ca ON NDP
Cheryl Gallant
Gallant.C@parl.gc.ca ; ON Conservative
Dean Allison
Allison.D@parl.gc.ca ON Conservative
Harold Albrecht
Albrecht.H@parl.gc.ca ON Conservative
Jack Layton
Layton.J@parl.gc.ca ; ON NDP
Kirsty Duncan
Duncan.K@parl.gc.ca ; ON Liberal
Malcolm Allen
Allen.Ma@parl.gc.ca ON NDP
Mauril Belanger
BelanM@parl.gc.ca ; ON Liberal
Michael Ignatieff
Ignatieff.M@parl.gc.ca ON Liberal
Navdeep Bains
Bains.N@parl.gc.ca ON Liberal
Patricia Davidson
Davidson.P@parl.gc.ca ; ON Conservative
Patrick Brown
BrownPa@parl.gc.ca ; ON Conservative
Peter Braid
Braid.P@parl.gc.ca ; ON Conservative
John Baird
Baird.J@parl.gc.ca ON Conservative
Carolyn Bennett
Bennett.C@parl.gc.ca ON Liberal
André Arthur
Arthur.A@parl.gc.ca PQ Independent
Claude Bachand
BachaC@parl.gc.ca PQ Bloc
Gérard Asselin
Asselin.G@parl.gc.ca PQ Bloc
Gilles Duceppe
Duceppe.G@parl.gc.ca PQ Bloc
Guy André
Andre.G@parl.gc.ca PQ Bloc
Luc Malo
Malo.L@parl.gc.ca; PQ Bloc
Josée Beaudin
Beaudin.J@parl.gc.ca PQ Bloc
André Bellavance
Bellavance.A@parl.gc.ca PQ Bloc
Maxime Bernier
BerniM@parl.gc.ca PQ Conservative
Justin Trudeau
Trudeau.J@parl.gc.ca PQ Liberal
David Anderson
Anderson.Da@parl.gc.ca SK Conservative
Garry Breitkreuz
Breitkreuz.G@parl.gc.ca SK Conservative
Kelly Block
Block.K@parl.gc.ca ; SK Conservative
Ralph Goodale
Goodale.R@parl.gc.ca ; SK Liberal
Ray Boughen
Boughen.R@parl.gc.ca SK Conservative
Rob Clark
Clarke.R@parl.gc.ca SK Conservative
Randy Hoback
Hoback.R@parl.gc.ca SK Conservative
Ed Komarnicki
Komarnicki.E@parl.gc.ca SK Conservative
Tom Lukiwski
Lukiwski.T@parl.gc.ca SK Conservative
Gerry Ritz
Ritz.G@parl.gc.ca SK Conservative
Andrew Scheer
Scheer.A@parl.gc.ca SK Conservative
Brad Trost
Trost.B@parl.gc.ca SK Conservative
Maurice Vellacott
Vellacott.M@parl.gc.ca SK Conservative
Lynne Yelich
Yelich.L@parl.gc.ca SK Conservative
Larry Bagnell
Bagnell.L@parl.gc.ca YK Liberal
E-mail to Federal & Provincial politicians
As a PWMS (person with MS), I like thousands of my brother & sister MS’ers can no longer, in all good conscience, support the MS society ; likewise, I cannot support any Politician or Political party that supports them and their close minded attitude towards a treatment for MS that thousands of Canadians are successfully receiving outside our Country.
To the medical community (including neurologists, the MS Society and Pharmaceutical companies) - who do you think you are? Just because they hold our lives in their hands should not give them the "power" to decide treatment options for us, I mean WTF - we live in a country that is SUPPOSED to have universal healthcare, refuses us treatment, yet freely gives care to other unfortunate souls from other countries. How can they dare decide that CANADIAN CITIZENS that ARE REFUSED CARE at home, and that we must go deep in debt to receive this care elsewhere.
THIS IS DISCRIMINATIION!!
It seems the care is universal if you don’t have MS, blocked veins be damned!! There exists much information to constitute a re-evaluation of how we should be approaching this disease. The venous aspect has been pushed under the table for far too long.
It is time for our great government to realize that this may not be solely an autoimmune disease. There exists enough evidence to support the concept of a venous connection and until we see this pushed to the forefront we cannot in good conscience stand behind the MS society any longer. For too many years we’ve been taking their advice and we still end up in wheelchairs. Along comes Chronic Cerebrospinal Venous Insufficiency and the society is out to disprove the link.
All we have ever asked is that you - Please help us.
I guess the Neurologists & MS Society are forgetting (ignoring) the Canadian Medical Association Policy.
Guidelines & General Principles
http://policybase.cma.ca/dbtw-wpd/Policypdf/PD08-01.pdf
Code of Ethics
http://policybase.cma.ca/PolicyPDF/PD04-06.pdf (first and foremost, consider the well being of patient)
I would be more than happy to provide any and all information you require to make an informed decision regarding this most important aspect for those of us who suffer from this crippling disease. I do have the support of a doctor who will back up this idea, when asked he stated “I would do it”.
I also find it rather ironic, that a chair of a Toronto MS Society is going to Poland for her Angioplasty....I wonder who is paying for this?
We are a force now and the MS Society realizes the obstacles they have put forth, and that they are battling a losing cause. No longer are we uninformed, willing participants in the money making ventures of those people have put in place, supposedly having our best interest at heart.
It seems that MS symptoms are really driven by “plumbing” and we have been using “electricians” all along.
Thank you so very much in advance for your consideration toward this most important subject.
Respectfully yours,
Lori MacMullen
lmacmullen@shaw.ca
Phone number:
To the medical community (including neurologists, the MS Society and Pharmaceutical companies) - who do you think you are? Just because they hold our lives in their hands should not give them the "power" to decide treatment options for us, I mean WTF - we live in a country that is SUPPOSED to have universal healthcare, refuses us treatment, yet freely gives care to other unfortunate souls from other countries. How can they dare decide that CANADIAN CITIZENS that ARE REFUSED CARE at home, and that we must go deep in debt to receive this care elsewhere.
THIS IS DISCRIMINATIION!!
It seems the care is universal if you don’t have MS, blocked veins be damned!! There exists much information to constitute a re-evaluation of how we should be approaching this disease. The venous aspect has been pushed under the table for far too long.
It is time for our great government to realize that this may not be solely an autoimmune disease. There exists enough evidence to support the concept of a venous connection and until we see this pushed to the forefront we cannot in good conscience stand behind the MS society any longer. For too many years we’ve been taking their advice and we still end up in wheelchairs. Along comes Chronic Cerebrospinal Venous Insufficiency and the society is out to disprove the link.
All we have ever asked is that you - Please help us.
I guess the Neurologists & MS Society are forgetting (ignoring) the Canadian Medical Association Policy.
Guidelines & General Principles
http://policybase.cma.ca/dbtw-wpd/Policypdf/PD08-01.pdf
Code of Ethics
http://policybase.cma.ca/PolicyPDF/PD04-06.pdf (first and foremost, consider the well being of patient)
I would be more than happy to provide any and all information you require to make an informed decision regarding this most important aspect for those of us who suffer from this crippling disease. I do have the support of a doctor who will back up this idea, when asked he stated “I would do it”.
I also find it rather ironic, that a chair of a Toronto MS Society is going to Poland for her Angioplasty....I wonder who is paying for this?
We are a force now and the MS Society realizes the obstacles they have put forth, and that they are battling a losing cause. No longer are we uninformed, willing participants in the money making ventures of those people have put in place, supposedly having our best interest at heart.
It seems that MS symptoms are really driven by “plumbing” and we have been using “electricians” all along.
Thank you so very much in advance for your consideration toward this most important subject.
Respectfully yours,
Lori MacMullen
lmacmullen@shaw.ca
Phone number:
Sunday, September 26, 2010
Jody Paterson: Why the fierce attacks on MS therapy?
Jody Paterson: Why the fierce attacks on MS therapy?
Excellent article, questions that have been asked by many, but why has no one ANSWERED? We keep getting fed this crap that there is no science behind it, when one of our biggest supporters is herself a scientist, Dr. Kirsty Duncan, and a strong supporter of this treatment.
I mean, we aren't saying it is a cure, but it is a TREATMENT that is a damn sight better than any of the poison that is being forced upon us by neuros and pig pharma. And it has also given relief from the constant pain we live with. Shouldn't they be concerned about helping us with that at least?
Excellent article, questions that have been asked by many, but why has no one ANSWERED? We keep getting fed this crap that there is no science behind it, when one of our biggest supporters is herself a scientist, Dr. Kirsty Duncan, and a strong supporter of this treatment.
I mean, we aren't saying it is a cure, but it is a TREATMENT that is a damn sight better than any of the poison that is being forced upon us by neuros and pig pharma. And it has also given relief from the constant pain we live with. Shouldn't they be concerned about helping us with that at least?
Monday, September 20, 2010
Thursday, September 16, 2010
GET THE IRON OUT
http://www.webmd.com/multiple-sclerosis/news/20031022/multiple-sclerosis-tied-to-iron-in-brain
A new imaging studies suggests that Iron deposits deep in the brain may cause multiple sclerosis as this article says.
I don't know how true this is, or if the events I mention are coincidental.
a) I used to get perms all the time, and cotton was placed around the hairliine to absorb the excess solution. On me, the cotton always turned a bright purple/red color, and the hairdresser told me it was iron - coincidence?
b) I could never wear watches as I had a severe reaction to the metal, contact dermatitis my Dr called it (even the button on blue jeans gave me a rash.
c) wind-up watches did not work on me, they ran fast or too slow, and even stopped dead. Chlorella
Could all this be tied in to excess iron?
I have suggestions from some of my FB friends (Diana and Tina) that after "Liberation" AKA angioplasty, it is especially important to "GET THE IRON OUT", so taking the following daily is important:
It's just one of each capsule, per day with a meal... Iron acts like little Pac Men, whereas it destroys tissue, so please try to minimize this from happening, as much as you can, by taking your Milk Thistle. Please wait until after your procedure to take this, as your blood flow inhibits proper elimination of the iron, therefore, it can be trapped in areas that chelation can't assist, until proper blood flow is restored
A new imaging studies suggests that Iron deposits deep in the brain may cause multiple sclerosis as this article says.
I don't know how true this is, or if the events I mention are coincidental.
a) I used to get perms all the time, and cotton was placed around the hairliine to absorb the excess solution. On me, the cotton always turned a bright purple/red color, and the hairdresser told me it was iron - coincidence?
b) I could never wear watches as I had a severe reaction to the metal, contact dermatitis my Dr called it (even the button on blue jeans gave me a rash.
c) wind-up watches did not work on me, they ran fast or too slow, and even stopped dead. Chlorella
Could all this be tied in to excess iron?
I have suggestions from some of my FB friends (Diana and Tina) that after "Liberation" AKA angioplasty, it is especially important to "GET THE IRON OUT", so taking the following daily is important:
It's just one of each capsule, per day with a meal... Iron acts like little Pac Men, whereas it destroys tissue, so please try to minimize this from happening, as much as you can, by taking your Milk Thistle. Please wait until after your procedure to take this, as your blood flow inhibits proper elimination of the iron, therefore, it can be trapped in areas that chelation can't assist, until proper blood flow is restored
- Green tea extract caps. (found at health food stores)
- Milk Thistle caps. so the iron doesn't get stopped in your body filters (kidneys and liver), where it can do damage.
- It's just one of each capsule, per day with a meal...
- Chlorella
- Lions Mane Mushroom caps - help with regeneration
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